Here's some pics that Grandma C took last night with my new sunglasses. Am I stylin' or what?
Saturday, March 31, 2007
Here's some pics that Grandma C took last night with my new sunglasses. Am I stylin' or what?
Friday, March 30, 2007
Get the message?? I also occupied myself with my new toys. Here they are...
Mommy calls them "hands" and they are always around when I get bored.
Grandma C and Miss Karen bought me some cool new clothes today...including one really pretty new dress and my first pair of jeans. Be watching Sunday to see how snazzy I am!
Tonight Mommy and Miss Karen went shopping and Mommy got some neat new things. We're both gonna look snazzy! She was going to take me, but since it was all wet outside, she left me to play with Grandma C. When she got back, she had some new things for me. She put me in my chair and started putting something in my mouth. It was pretty good. She said it was bananas. I just know that it was mushy, but not too bad.
It kind of got a little messy. Mommy says we'll try again tomorrow.
Thursday, March 29, 2007
After we got done with the appointment, we met Auntie Rachel for lunch. Mommy and Auntie Rachel talked for a long time, so long that I fell asleep while Auntie Rachel was holding me. Then we ended up at Auntie Rachel's hospital so that I could meet the nice ladies who work with her. She said they all check the blog to see what I'm doing each day too. Hi Ladies!!! It was nice to meet you all!
We went to see Auntie Rachel's office too. She has pictures of me on the wall and on her shelves. I feel special! Thanks Auntie Rachel. Say hello to Mr. Patrick for me! She must do important work or something because she has alot of stuff in her office. And she works alot!
When we got back to Grandma's house, I just played for a while in my gym. It was lots of fun.
Here's some action for those of you that seem to like it... showin' off a new almost-skill...
Here's a few more little videos if you need more (yes, I see you Grandparents!)
Gym play 2
Gym play 3
I did get to see my ole' pal Jennifer while at the office. (Hey Jen!!!) We used to work together way back in the pre-marriage days... ah, the things we managed to get into. :o) Good times...
We see Dr. F for Braska's follow-up and echo on Monday.
Wednesday, March 28, 2007
Tomorrow we'll have more play time I think, and that will be fun!
Tuesday, March 27, 2007
~First thing this morning, before Pop even left for work, we took Belle to see Miss Wilma, her groomer. (She needed a haircut SO BAD!) Then we went back in an hour to pick her up. (This is Miss Wilma saying hi to me.)
Belle's before and after pictures....
~We dropped Belle off at our house and went to see Dr. A. While we were at the hospital, we went to the NICU to say hello to the girls there who took care of me. (Hi Miss Melissa!!) Dr. J wasn't there, so we'll have to go back when I can show him how big I'm getting.
~We went to the bank on the way home from the hospital. (Drive-thru, I didn't get out then.)
~We got home in time for me to eat lunch, then Mommy fixed lunch for Pop so it was ready when he got home for lunch break.
~We went back to the hospital, or the big building next to it, to take some work things of Mommy's to one of the doctors.
~On the way home from the hospital this time, we stopped at Dr. Y's office so they could get me naked on that silly scale again! So much with the naked weighing!
~We stopped at El Toro, our favorite restaurant, (where they all like me and Miss Martha carries me around when we go there) to pick up some things to go with dinner.
By the time we got home, I was snoozing!
Here's some other fun things about today...
~I spent some time on my tummy playing. I haven't been able to do this much because my chest has still been hurting from my surgery. But today it was fun. And I even looked around a bit. Mommy thought that was pretty neat.
~I found that there is a big red button in front of me in my car seat. I can't do anything with it, but I figured out that it's there and so I tried to play with it while we were driving so much.
~My Pop played with me for a little while when he got home from work tonight, and that was fun. I even reached up and grabbed his face. He was impressed, I think.
But after a day like this, I'm pooped. Mommy says tomorrow we'll be in the car for three hours in a row on the way to Grandma C's house. So time for dreaming now, and I'll get to nap tomorrow too.
Well today we just did a quick visit with Dr. A to check in so he could get updated on her current condition. He confirmed what Dr. Y told us last week--that there is a murmur, mitral valve regurgitation or leakage, that is heard now. This is not abnormal in situations like hers, but we do need to be sure that it is manageable and not out of hand. He also agreed that we need to get an echo done to see exactly what's happening. Since they want to compare it to the ones right after surgery, we're headed back to see Dr. F on Monday. IF it is more than they like to see, they will watch it for a while and then most likely have to do more surgery to repair the problem. Again, that would not be all that abnormal, but we're really hoping it's not needed.
So we're headed to StL tomorrow afternoon since I have an appt Thursday morning with the surgeon who did my surgery to check on this one incision site that is just not cooperating like the other three did. Then we'll hang out until we see Dr. F on Monday afternoon. I'm kind of tired of packing and unpacking that dumb suitcase!
So that's the latest...you're officially up to date!
Monday, March 26, 2007
Mommy and Pop always say this couch is the most expensive lesson they ever learned. I'm not sure how that works, but I know they are not really sad to see it go after six years.
Grandma C and Miss Karen asked Mommy if they could take me with them to see Great-Grandma Jeannine and Great-Grandpa Fred in Montana, but Mommy said she didn't know how I'd get my food without her. I think maybe both me and Mommy could sneak into a suitcase and surprise them on the way. Mommy didn't think that would work though.
So since Grandpa John was sad he couldn't come along today to visit, I'll put up a picture of me and him from right after I got out of the hospital. I'll see you soon, Grandpa John!
Sunday, March 25, 2007
For those of you that prefer still shots, here's a few...
I was enjoying talking to Pop during church, and he must have liked it to because he took me out of the big, quiet room and walked around so we could talk. After we got back to the big room, I got to see some more friends. One is Miss Trisha. She has been doing all kinds of cooking for Mommy and Pop since I've been keeping Mommy so busy. Mommy says she is a lifesaver. I think that's really a good thing.
Today she brought a bunch more stuff, some for Mommy and some for Pop (he's picky, Mommy says), but nothing for me. Oh well, maybe next time. I'll just stick with milk for now, I guess.
When we got home, Pop and I went out again to get a movie. I helped by carrying it home for him.
Miss Mindy and Mr. Tim and Mia came over to watch the movie too. I napped during the movie, and Mia did too. Mommy said it was only ok, so I didn't miss anything.
Saturday, March 24, 2007
There are a couple other shorter ones at the following links... again, mostly for my grandparents. They seem to like to see me do just about anything, or even nothing. Love you guys!
Friday, March 23, 2007
After her shots yesterday, she has had some minimal reaction in her leg, just the same as she did last time, which just causes her to be uncomfortable. So she was one grouchy little thing today, and she made sure that I got absolutely nothing done, work wise. We did go get her blood drawn, and although they still had to stick her twice, they did get enough on the second stick. This is good, as she is horrible to try to draw from... but she sure screamed more than ever before. There's that energy coming to play again.
She seems to be eating better today, but again, she was very fussy and that made things difficult with feeding too. I'm really hoping things improve overnight, since I'll have to be working all weekend to get caught up from the last two days. And that doesn't exactly make me the most pleasant person ever to be around, but I'm managing not to snap just yet.
Thursday, March 22, 2007
She gained from 10 lbs 15.6 oz yesterday pre-feed to 11 lbs 0.5 oz pre-feed today. Not much, but I'll take it. We're going to try to get her to take as much as possible, but she still won't have anything to do with a bottle...only nursing for this girl now. We will go back for another weight check next week.
He also ordered some blood work, which we'll do tomorrow. We're going to try her without one of her meds (for reflux) to see how she does. He did hear a bit of a heart murmur today that he didn't hear last week, so he wants us to see the surgeon again the week after next to repeat an echo for comparison to make sure all is ok. We also need to see the cardiologist up here next week, as well as setting up appointments with a gastroenterologist and a dietician at the Down Syndrome Center in St. Louis. That's alot of appointments... but we'll manage.
So the trip to StL that was going to be this coming Monday to see MY surgeon for follow-up will be moved to the next week so that we can coordinate our appointments in the same trip.
We will be getting the official discharge from home health as well. Further weight checks will be done in Dr. Y's office since she's doing better and the weather isn't a factor anymore.
Lastly, her therapies for motor development and PT/OT will be starting in the next week or so....because I have too much time on my hands and need more to do. HA! Good thing she's worth all this effort!!!
Then, after Dr. Y checked me out, Miss Laurie came back and stuck me with something very sharp three times. That was no fun at all. I told her about it, too. But Mommy told me I did real good, so then I was happy.
Mommy, Pop, Belle, and I went for another walk today. I like walks. I like to be outside. But whatever we're walking on is really bumpy. Mommy says the sidewalks need fixing, and I hope it happens soon.
Tonight our friends Miss Debbie and Mr. Kevin came over. They brought dinner for Mommy and Pop. I didn't get to have any food, but they played with me. Miss Debbie brought me all kinds of neat toys and even a new coat for next year. I can't imagine I'll ever be that big, but they told me I'll make it. Mommy and Miss Debbie watched basketball and talked alot, and Pop and Mr. Kevin watched other stuff while Pop worked on his computer. I played with each of them for a little while then I would change my mind and ask for someone new.
Wednesday, March 21, 2007
Today is also World Down Syndrome Day. I don't really know what that means, but Mommy was telling me about how special I am and how we want everyone to know that it doesn't mean that we won't be great, us kids with DS. We've got alot of stuff to give to this big old world, so watch out! Mommy calls me "the up" in her day....no pouting about Downs around here, no sir! I'm just excited to show Mommy and Pop what I can do!
The only less-than-fun thing about today was that I had to be weighed on that dumb scale again...naked, of course. I just don't care for the undressing part at all!
Miss Tammie came instead of Miss Dayna today, and she weighed me, then waited while I ate lunch, then weighed me again right after. That's too much weighing in one day, if you ask me.
I saw something new today. There were ducks in our backyard. We have a big deep hole in the ground in our backyard that Mommy says is fun to play in when the weather is warm. She calls it "a pool." But I think the ducks are confused, because they float around in the rainwater on top of the cover like it's a lake or something. Then they just sit on the side and enjoy the sun. It looks like fun, so I hope it gets warm soon so I can try it too.
So today we had a visit from Tammie with home health. (We are still sad that it was Dayna's day off.) Braska was weighed pre-feed, then I fed her, then she was weighed again. She gained only 0.6 ounces, which is supposed to mean that is all that she ate. I can't see how that's possible, but the numbers are supposed to be believable. She was sucking and swallowing like a champ, and she was super contented when she was done, so it would appear that she had a good meal. I just don't understand the weight differential.
The first changes we have to make are to make sure she is eating on a 3-hour schedule again. We've been allowing her to dictate when she eats, but apparently she is like her dad and food is not a priority. And she's been sleeping through the night, so we've been letting her skip one feeding then, but we have to stop that for now as well. Darn....I was enjoying getting more than 2 hours of sleep at one time.
Tomorrow we see Dr. Y for her 4-month check and shots, so I'm sure we'll be discussing what he wants to do. I really do not want to go back to NG at all, so we'll be looking for alternatives. But if it's best for her health, we'll have to go that route, of course. I'm hoping I can stuff her full today and her weight can be up tomorrow when we go to the doctor... that would be good.
Tuesday, March 20, 2007
She did take a few breaks to play with me a little and we listened to some Baby Einstein music. I like that alot. My chair makes nice music too, and I did a little wiggle dance with the tune.
Tonight I played in my Pack N Play while Mommy made dinner. I have alot of soft toys in there that people have given me. I don't play in there very much, but it was fun this time. There's a neat bunny that someone gave me, and I think its ear tastes very good.
Monday, March 19, 2007
Sunday, March 18, 2007
The other really neat thing about church is that it is my special time with my Pop. He always holds me all the way through, and I usually just watch what's happening until I fall asleep. He is really comfortable to cuddle with. Today I got to get up high and look around more, and that was fun.
There are alot of people there.... but everyone I could see smiled at me, and that's really fun. Mommy told me that all those people have been asking God to make me healthy and keep me safe. Thanks everyone!
Our friend Miss Joann came over today to visit too. She brought me some presents... even some sunglasses. I don't quite understand it, but Mommy kept trying to put them on my face. I just thought it was better to play with them.
Saturday, March 17, 2007
Friday, March 16, 2007
Thursday, March 15, 2007
Then Mommy took me with her to another doctor's office. But this time no one made me take my clothes off and get on that silly cold scale. They just left me in my seat and told me how pretty I am. Mommy did some work for these doctors and I waited in my seat. She said we get to go visit doctors sometimes for her work, and I get to just watch on those visits. That sounds good to me.