Monday, November 21, 2011

It’s my birthday!! I’m 5!

Yep, that’s what I’ve been saying all day. “It’s my birthday! I’m 5!”

It’s been a pretty fun day, and there’s more fun tonight. So I’ll tell you about it soon!

Tuesday, November 8, 2011

Good report from Miss L

Here’s a little piece from a note Mommy got from Miss L today… she helps me learn how to climb and run and get stronger.

I came by the classroom to get her and I was helping her get ready.  She stood there and started squatting in place.  I asked her what she was doing and she tells me, "I plie`-ing" …  It was hilarious!!!

I’m learning so much in dance class that I have to share it at school! You should try it! Just put your feet together and bend your knees… Plie` everybody!

(If you missed some of my stories about dance class, you can go here.)

Friday, November 4, 2011

Mommy report: “Eating” cookies

I feel it’s only fair to provide full disclosure, to clarify where we’re at with feeding. 

Jennie left this comment on a recent post
Tears in my eyes seeing her eat a snack... just like everyone else.

And because I know that feeling so well, I don’t want to mislead those of you who are somewhere on this feeding frustration journey.

Braska is progressing GREATLY, when we look at the big picture.  If you saw this pic, you can see something huge even if you don’t see the following few seconds. 

She has a cookie in her hands, and of her own free will, she has it in her mouth, between her teeth.  That, by itself, is amazing.  She has come a long way to get to that point.

But she didn’t eat the cookie.  She probably closed her teeth on it just a bit.  But she didn’t actually break the cookie off in her mouth.  She then set it down and was finished.

So while we celebrate where she is, we know we still have a long way to go.  And though most kiddos don’t have anywhere near the long learning-to-chew journey that Braska has (but a few do Smile right, Jennie?) for those that know those months and years of work waiting for true eating to happen, it can be so difficult to watch.

The true picture of where she is in this process…  At a couple weeks short of 5 years old…
~She is crunching on very small graham cracker sticks in feeding therapy. She will close her teeth and crunch a few times.  Sometimes the crumbs will stay in and she’ll manage them and swallow, but many times the pieces come out.
~It has taken us over 18 months of feeding therapy to get to the point that she will even have food in her mouth that is crunchy, and then to close her teeth and make the crunch sound.
~She still has a very VERY long way to go before she just picks up a snack cracker and eats it like her sister does. 
~She IS still taking all her necessary fluids orally, as well as all her calories and nutrition in her food.  No tube use (except for eye surgery day when she slept all day) for over 2 months now. YAY!
~Her “eating” on a daily basis is still mashed or pureed foods, though not a super smooth texture. She is handling a thicker, more lumpy texture at times.  She can now do instant oatmeal without it being blended.

So celebrate with us for what she has accomplished!  But keep pulling and praying for our girl to keep progressing.    I’m looking forward to the day I hand her a graham cracker and she just eats is like no big deal!

Thursday, November 3, 2011

One more dress-up

Today was Thursday.  On Thursdays I don’t have school.  So Mommy asks us what we want to do and then if it’s not too hard, we go and do it. Fun!

We decided that we needed to go see Grandma C today.  At her work.  And we needed to take her an apple.  That’s what KiKi said.  And we needed to wear our costumes, too.

So we did…

Since we didn’t get to see her on her birthday on Monday, we gave her birthday kisses today. 

(And we got to see PaPaw John and Uncle Ethon too. Extra fun!)

Wednesday, November 2, 2011

Fun-full Saturday

Saturday we got to wear our costumes to dance class.

Here’s a little movie of our practicing at dance class.

Here’s a little movie of me and KiKi doing our princess walks. Except this time we were flying bugs!

And here’s one more short movie of our dancing practice. We have been getting better at learning to listen and try to do what Miss SJ does.

After we finished our dancing part, we got to have snack, and it was a cookie snack.  Anyone know why Mommy likes this picture a lot???

After snack, we got our sticker cards.  Every time we go to dance, we give our cards to Miss SJ so she knows we’re there. Then when we get done she gives it back to us with a new sticker!

Then it was time to go take our class picture since we were all so cute in our costumes.

At the end we always say a prayer to thank God for our friends and fun dance class.

Then we go over and see Mommy and Daddy again. We always get big hugs and they tell us how proud they are of us.

This week, since we were in our costumes, we went down to see PaPaw John at his house after dance class.  Grandma C was not home, but we got to show PaPaw how cute we were.

Mommy went to work, and we took naps.  And after nap, Daddy took us to a birthday party for our friend Anthony.  It was at the jumping place where they have great big slides and bouncy houses.

Here’s a quick movie of me an Uncle Ethon sliding. He came to play with us there.

KiKi’s favorite part was Batman. Isn’t this a funny picture?  (And Daddy didn’t even tell her to stand like that!)

What a fun day!!!