I followed up both by phone and email when we got here and I hadn't yet heard from the GI office. I did finally get a call back and we're set to go in there tomorrow early afternoon.
I've changed treatment, and I'm not doing the silver nitrate anymore. It was hurting her, even though they told me that the growth shouldn't have feeling. She was screaming the last two times I applied it, and for those of you that know her, she doesn't cry. She has a hugely high pain tolerance, and can go days without crying at all. So for her to scream like that was sign enough for me that we weren't continuing that treatment. I was turned on to an alternative treatment, and while I was checking it out, I found another one that had rave reviews by parents on several G-tube sites. So I'm now using a nystatin/triamcinolone cream, which we happened to have in the house from a previous prescription for us. It has helped some (more than the silver nitrate ever did), it doesn't hurt her, the growth of the granuloma has seemed to stop, and I think it is starting to decrease a little. I'm still going to have her seen, because I'd prefer they remove this growth and cauterize it to be done with it. Plus, it's changed so fast, there's no telling what it might do between today and tomorrow.
Thanks for your prayers. The good part is that she doesn't seem bothered by this, now that the silver nitrate is out of the picture. I'm very pleased about that.
Braska will be up to posting more cute pics of herself soon, but in the meantime, take the time to check out this story.
I've changed treatment, and I'm not doing the silver nitrate anymore. It was hurting her, even though they told me that the growth shouldn't have feeling. She was screaming the last two times I applied it, and for those of you that know her, she doesn't cry. She has a hugely high pain tolerance, and can go days without crying at all. So for her to scream like that was sign enough for me that we weren't continuing that treatment. I was turned on to an alternative treatment, and while I was checking it out, I found another one that had rave reviews by parents on several G-tube sites. So I'm now using a nystatin/triamcinolone cream, which we happened to have in the house from a previous prescription for us. It has helped some (more than the silver nitrate ever did), it doesn't hurt her, the growth of the granuloma has seemed to stop, and I think it is starting to decrease a little. I'm still going to have her seen, because I'd prefer they remove this growth and cauterize it to be done with it. Plus, it's changed so fast, there's no telling what it might do between today and tomorrow.
Thanks for your prayers. The good part is that she doesn't seem bothered by this, now that the silver nitrate is out of the picture. I'm very pleased about that.
Braska will be up to posting more cute pics of herself soon, but in the meantime, take the time to check out this story.
The 3 nurses I spoke with, including one NICU, said the silver nitrate is very painful. Glad the new treatment is helping. Love you both!
ReplyDeletePoor Braska!! I know it had to really hurt her if it actually made her cry! I'm glad you found a different treatment. Such a strong girl you are Braska!!!
ReplyDeleteOops, forgot to mention I read the article you posted the link to. WOW. An amazing couple, they will be wonderful parents to Grant. I'm going to have to join that forum, I had never seen it before!
ReplyDeleteHey RK, this is Dan & Carolyn H.'s daughter (think way back into your past :-). Have been keeping up with you guys for a few months now and just wanted you to know I am praying for you and hope this gets cleared up very soon. I'm too chicken to even click on the pictures! You're both strong gals and I know you will get answers soon..
ReplyDeletePoor Braska! I'm so glad that you went with your instincts ans found a different treatment. You are still in my prayers.
ReplyDeleteGrammy--I'm glad it's helping too.
ReplyDeleteKacey--I hope you do join the forum...come on by!
Jessie--How in the world are ya? Good to hear from you. Glad you've been coming around to check on the BBear. Please tell your family hi for us!
Melissa--I wonder how our GI will feel that I changed treatment on my own...we'll see in a few hours.
AWW That Silver Nitrate stinks. So happy you have found something that seems to be working better without hurting Braska. WTG Mom! I hope the GI was ok with the change!! I have gone head to head with a few specialists over the years and I have to say I trust and follow my Mommy instincts and they point me in the right direction. Braska will be in my thoughts and prayers!
ReplyDeleteRanda,
ReplyDeleteYou know her better than the Dr's do and you can work as a team with them; their expertise with your love to help her get better! Love to all of you!
Hey Braska girl....I love you :) Auntie V