Sunday, March 18, 2012

Big News!!!! Button Free!!!

Mommy note:  Tonight as we were leaving the in-laws’ house at about 9:45pm, I heard an “Uh-oh” and turned around to see PaPaw holding Braska button.  It was not attached to her. 

We all kind of paused, I said flippantly, and half joking, “Well, I guess we’re going to be done with that now.”  I then quickly had anxiety start creeping in.  Over the next minute or so, quick conversations happened, and M agreed that we were probably ready to just let it stay out.  We were 45 minutes from home, had no supplies with us to reduce the balloon (which was still intact, weird as that always seems to me) and put the button back in, so we had to make some decision pronto.  Break the balloon in order to get it back in and hold the stoma open---but we don’t have a back-up button at home---OR just call it done and move on.

I called our nutritionist right then, not realizing until it was ringing that it was 9:45pm.  After a quick chat with her, and her assurances that she felt Braska was also ready to let the button go (we have discussed this recently, possibly planning to take it out in the next month or so), I agreed that this was our pivotal moment.

This is the moment we have been working toward for 5 1/2 years. 4 1/2 years with the g-button. 

So we put a makeshift bandage over the stoma, which was not leaking one drop, even though she had just had a late meal, and gave hugs and goodbyes.

As we were leaving in the van, I said a quick prayer that it would be all good. That she will continue to do as well as she’s done.  That the stoma would heal quickly and without complication.  And that I could adjust to this new strange life.

Because it seems like it is a new strange life, and it’s only 90 minutes old.  I suppose when everything has been about feeding, and getting off the tube “someday,” and being a mom of a tube-fed kid, it just feels really odd to have a sudden change in identity and shift of goals. 

But it’s a good strange. A positive odd-ness.  I’m excited…

Braska did stop to look at what was happening, she seemed slightly confused, but went right back to wrestling and playing immediately.  She’ll not miss it one bit, if my guess is right.

So celebrate with us, pray for her continue progress, and if you’re on this journey, know that it CAN happen…  I am realizing that I never really visualized that this day would come.  But it’s here. And I’m going to have to adjust to this new button-free “normal.”


  1. Braska is shining like a star! I am so happy for you guys. Yahooooo! Your little girl is one of my biggest inspirations.

  2. wow! that's huge news! I kind of love how it happened. I will think a decision to death myself, so having it taken out of my hands is always kind of nice.

    She's going to be just fine. Yay Braska!

  3. Oh that is so exciting!! Yay! Continued prayers that all goes well on this new non-tube life!

  4. WOW! That's huge news!

    Wow, I just realized I said exactly what Cate did. Ha! Don't tell Cate I'm accidentally copying her ;)

    What a big milestone! Isn't it funny how these things are no big deal for the kids, but the moms have to worry over every last little detail?!

  5. Oh my goodness great!!! Tommy and Braska are both gtube free now. PTL


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